The NDIS: A Lifesaver for Single Mom and Her Son with a Rare Condition
The journey for families raising children with disabilities can be incredibly challenging. Single mom Sarah Miller understands this all too well. Her son, Ethan, was diagnosed with a rare chromosomal disorder called Q10 26.3 translocation to 8P. This condition affects Ethan in various ways, impacting his vision, mobility, and overall well-being.
“Ethan’s condition makes daily life a struggle,” Sarah explains. “But since the National Disability Insurance Scheme (NDIS) came into our lives, things have improved significantly.”
The NDIS: A Beacon of Hope
The NDIS program has been a lifesaver for Sarah and her family. It has provided Ethan with access to essential therapies he desperately needed but couldn’t afford before. These therapies, including physiotherapy and occupational therapy, have made a remarkable difference in Ethan’s life.
“Early intervention with physiotherapy was crucial in identifying Perthes disease,” Sarah shares. “Thanks to the NDIS, we were able to get him the treatment he needed, potentially avoiding a hip replacement in the future.”
The impact goes beyond physical therapy. “Ethan’s occupational therapist has helped him improve his writing tremendously,” Sarah beams. “It’s truly amazing to see the progress he’s made!”
Beyond Therapy: The Gift of Support
The NDIS doesn’t just provide access to therapies; it also offers essential in-home support. This support has been invaluable for Sarah, a single mom juggling work, school, and appointments for her three children.
“A few hours of in-home support each week allows me to attend classes and work on time,” Sarah explains. “Finding the right support worker was crucial. I wanted someone qualified, someone Ethan could connect with, and ideally, a female provider.”
Sunshine, a local NDIS provider, connected Sarah with Emma, a perfect match for Ethan. “Ethan absolutely adores Emma, and the feeling is mutual,” Sarah shares.
Emma picks Ethan up from school on Mondays and helps him develop essential life skills at home on Wednesdays. This support includes assisting him with daily tasks like getting dressed, brushing his teeth, and preparing breakfast.
“This allows Ethan to take his time in the morning, something that can be challenging with a busy schedule,” Sarah explains. “The support is also fostering a sense of independence in Ethan, which is fantastic.”
A Lifesaver for Families
For Sarah, the NDIS has been a lifesaver. While the initial setup process had its challenges, especially with her busy schedule, Sarah emphasizes the incredible support she received. The NDIS team accommodated her needs, offering assistance via email and phone whenever possible.
“I know the initial process can be daunting,” Sarah acknowledges. “But the benefits are absolutely worth it! The NDIS opens doors for individuals with disabilities and provides much-needed support for families like mine. As a single parent, I simply wouldn’t have the capacity to give Ethan everything he needs without the NDIS. It’s a gift, and I’m incredibly grateful.”
Sarah’s story is a testament to the life-changing impact of the NDIS program. It empowers families like hers to provide their children with the support and opportunities they need to thrive.
